Doing much better now. I am finding certain foods I had banned because of MSG I can now eat, this is good and bad. I have gained some of the weight back that I lost. Its 5 lbs and that is not horrible but I do not want it to continue!! I find I am slipping back into my old terrible habit of constantly munching on food, I am going to the grocery store either today or tomorrow and stock up on fruit and veggies and need to get my chia seeds. I read about a fiber that will help you keep full I need this!! Butterbur still is helping and I do believe when I remember to use it progesterone cream really helps mainly with sleep for me. I was supposed to have botox next week and I canceled the appt. the higher dose made me not be able to think at all for the next 24 hours after the injections and i really disliked the way that dr. did the injections. If I need it again I will get it here even though the dose is not as high I like the dr. here. I know that once you have migraines at least with me I seem to find a trigger avoid it or find a treatment and it works great for awhile but then it always seems to find a new path, a new trigger the meds dont work at all. So for now I am enjoying the benefits of butterbur and ginger and the bonus of more energy less headaches I know it can be temporary. I will make the most of it for now!
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OF course last week I fell on ice hurting my back. This being the 2 weeks of my migraines too so add a double whammy to me feeling like crap. The butterbur helps for sure the days of the headaches this month seem to be as many as they were before but they are not knocking me out for the whole day I seem to recover much easier. But still for huge parts of a day I feel terrible and when I have these it does suck my energy and make me not feeling like doing anything. Now add christmas time to this and the most busy week for christmas activities and it is not at all a good combination. It is amazing because for a good amount of time i was really getting a handle on my house and now the day before i am having a party my house looks like a bomb hit it. I have a cookie party today and then a fundraiser yesterday we had two things and a party the day before this. I would have never scheduled the party this week had i known that I would be so busy this week. I feel that I should consult my calendar before scheduling events that if it s the week that I am expecting these hormone type migraines just plan on nothing the thing is that eliminates like half of the month!! I really want to give up but I wont. The maxalt is kicking in and I will clean my kitchen before I leave for my cookie party today. I am very glad I made lists of all that I need to do before the party because my brain can not think right now so lists are always important to me.
Did not sleep well last night its the hormones and the fact that I fell 2 days ago and really hit my back hard. It is feeling better today but I attribute that to resting allot today. I took pain meds last night and a muscle relaxer and still could not sleep then at 1 am I started with a migraine, jeez this medication thing is getting out of hand but I had to take a maxalt nothing else works with a migraine. But of course I could not still sleep so at 2 am I took an abien. But the rest of today i was wiped right out. I am finding with these headaches as of late thanks to butterbur they are not as bad as they used to be and I mostly get them when its that hormone week. It is tiring that I still have a week where some wipe me right out and a day is lost but those days are less than ever and this week it was 2 days vs at other times it would be for 2 weeks. I ate lemon pie last night and not really sure if the citrus was a trigger it may have been with in 2 hours after I ate it that the headache started i am not sure if the stuffing i ate had sausage in it and that for sure is a trigger unless it s the locally made sausage that i get that has no nitrates in it. This is one of the reasons I like to have holidays here then I can control what is in my food. I hate having to wonder did they add bullion to the gravy? Is there something processed i can not have it can be very frustrating but these foods are triggers so it is in my best interest to avoid them.
I have been on butterbur and ginger for about 2 weeks, and I have to say I feel great! The depression and heaviness that was in my head is gone the anger I was feeling all the time is gone for me topamax was evil and turning me into a person that i did not know! This is the week that I would have the worst migraines almost every day and ........NONE! Well thats not true I had a couple of small ones over the weekend and yesterday a small one but it does not wipe me out and they dont give me that brain drain. so much more is getting done around the house. I am still reading the book your migraine brain and am learning lots from it as one thing a migriane brain gets dehydrated very easily and that is actually why alcohol really bothers migraine people and it says to drink 1 glass of water to every drink. Even in daily life drink drink drink!! So i read on a website that drinking water through a straw will make you get it down faster and by god its so true!! I have been getting through a 20 oz bottle of water at work every day when I used to maybe have time to drink half or so. I keep it up when I get home too. I used to drink a decent amount of water but I am sure most days did not get my 8 glasses that is allot!! But am doing it now! Also she says to log in a food journal everything you eat I have been doing that too so I can see if there is a pattern to when I have my headaches and if there is a constant in the foods. I truly hope this is not a fluke and I can finally begin living my life like a normal person.
I dont think that I can do the whole avoiding soy thing it is in to much and I have given up so much already. Yesterday I had a healthy breakfast packed for work but I work in a store so everything is right at my fingertips. I didnt want what I had packed so I ended up eating a Belvita breakfast cookies they are healthy but yes they have soy. I also have graham crackers in the morning with my coffee and yup soy. I will try but I have a job and lots of things I want to avoid I eat because I simply do not have enough time to make everything homemade. Many breads and rolls have BHT I would prefer not to eat this but do I have time to make homemade bread and rolls ...umm NO! I stopped drinking coffee mate and cremora over a year ago lots of chemicals. Sometimes I make homemade flavored creamer but have adjusted to the taste of half and half and I still have to add some sugar! Now for some reason, well I guess it was looking for soy, I see that my half and half has carageenan I have avoided flavored creamers for this reason. Carageenan is a funny one because its a thickener and it can be a source of MSG. sometimes it is made with sea weed this is a safe one to eat but how do i know the difference? Unless its stated and sometimes it is I just do not know. So I have decided to see if I can handle whole milk in my coffee instead of half and half. I can and no carageenan in it. I also noticed that my most favorite toothpaste has maltodextrin in it a known source of MSG!! CRAP! So I am switching to crest total care I see no maltodextrin in it. Since this months headache lasted 3 weeks it gives me one week until i start my period so one week to feel human and be headache free. I am trying to really eat healthy this week and work very hard to avoid all trigger foods I am hoping this will make a difference in how my head feels next week. I am packing celery with peanut butter for my mid morning snack for lunch i will have salad with one of my good dressings for dinner its just the kids and me and I am making waffles. I have been drinking a berry detox tea too this helps sometimes the regular detox tea tastes OK but the berry is pretty good. I have felt so good this week and I am wondering if its the butterbur already or just being off topamax. It is amazing how much that I can get done around here and how clean my house can be when I feel really good. I did not sleep well at all last night wind and rain kept waking me up so far I do not feel tired but I have a ton of stuff to do today and i hope I do not get hit later
So overall this month has been sucky as far as migraines almost 3 weeks of them with a few days off here and there. I have decided that I have to take things in my own hands as always. I called the Dr like 2 weeks ago and they never called me back. I just want to feel normal for more than 2 days at a time. I went to a party last week and didnt bring up migraine but the hostess did. Apparently one of her friends has them so we talked about it. She asked if I had eliminated Soy I said I had not thought much about this. She said that soy like MSG is in everything and its Soy Lastitate. I admit as of right now I have not done any research on this other than look at labels and she is right its everywhere. She said soy affects a womans hormones and since my migraines are so often hormone based I thought ok maybe i should do this. Well until I looked at labels and geez it's in everything. The thing is if it doesnt have that soy lasitate it has soybean oil used in it. Like one of my best snacks are triscuits yup used soybean oil, I wanted crackers in my soup and again soy in it ANY chocolate has soybean they use it to bind the chocolate..DAMN!! i will try eliminating for a week and see. I looked up all kinds of migraine treatments ect. I have read allot about butterbur extract it has actually had clinical studies and over 3 months had a 60% reduction in the amount of migraines. I started it today I will see how it works. I also had a massage today hoping to break the cycle before my migraines start next week. So new things and we will see. I am reading a new book called the migraine brain hoping for new incite.
Last week was a terrible week I had a migraine every single day except Friday but then Friday I felt terrible spacey tired, brain fog. It was not good. I did however have a good weekend. Now its Tuesday and I started with yet another migraine yesterday, this seems to normally go hand in hand with the second wave of my period though I have not restarted the spotting the head doesnt care! What is very frustrating about these headaches is that they do not seem to go away all day what I mean is that they go away then come back so its 2 maxalts per day. Now when you get 12 per month I am worried I will not have enough. I called the Dr. Today because I am so frustrated but really dont think he will help I have lost all faith. I have read allot about the herb butterbur I had a long talk with my husband this weekend. Since I have seen this new Dr. I have gotten worse, lowering the topamax needed to be done but has made the migraines much much worse and most likely the lowering of the verapamil has not helped either. I believe I need to get off the topamax it has changed my personality and made me depressed and stupid Now when I am getting a migraine i believe that I loose m ability to think well and then when the really bad brain fog kicks in forget about it. So back to what I have been reading about butterbur people on websites can rate how these things work for them and butterbur seems to get high ratings many people say that it takes the brain fog away I have never read that ANYTHING takes away brain fog! The other thing is since I have lost so much weight I truly hate to have these drugs with the side effect of weight gain as so many of these migraine drugs do and the mental side effects like actually giving me brain fog or making me angry or agitated make me so nervous. I have a very important wedding this weekend and I just pray that I feel good for it geez I just pray I feel good tomorrow.
So yesterday I started my period and yes this is the beginning of my 14 or more day headache as of late. Last month I never truly recovered and never felt 100% so back to the feeling like crap. I think the chasteberry has lost most of its effect things for me seem to work for awhile and then stop this seems to be another thing that has done that. Its so frustrating. Part of the issue is that the medicines have dropped dosages. I am doing my best to fight this , my husband gave me an awesome massage this helped loosen up my neck. I am using the brain sync and taking the maxalt before bed. So the headache today was much more tolerable however I was not able to think well and tired and spacy, I continue to have pressure over my left eye. I will take maxalt and tramadol before bed and use the brain sync music. I am going to download a new brain sync there is one for focus and I have wanted it for a long time. My husband has been getting mad at me for not being able to focus and I am desperate here. So I will try it. I do not know how I will have time to use it in the morning but I will try. Some ho this has to end but I do not think it ever will.
I have been so starving this past week and its freaking me out. I have not gained any weight though I do have a bloat to my tummy due to hormones. But still it scares me I do not want to get lazy and go back to those 40 pounds!! I did work out today and I know this does help with my headaches it keeps stress lower and muscles looser. For lunch today I ate peanut butter and fluff (I know fluff is now the greatest but again weird craving) on 12 grain bread and amy's lentil soup and chia chips. I have to say I love Amy's soups no wierd ingredients no GMO products not crap in them. After today I will say lentil not my fav but i tried it. I love the creamy tomato its my favorite! Funny I worked last Sunday and ran and got Panera, have you ever looked at the calories from that place? Dear ever loving GOD!! Creamy tomato soup there is like 350 calories but Amy's is 130. The chicken salad is over 600 calories!! WOW!! Add the cappucino and the chips and its a 1000 calorie meal! So I will stick to Amy's and make my own chicken s
Yesterday I had my first botox appointment with the new neurologist. Funny the first time i saw this guy I was very impressed not so much this time. IF the botox really works I my feel differently. He came in and like and in maybe 5 minutes was done. When I went to the other Dr. it took awhile and he looked for the muscles this was like BAM BAM BAM!! He did hit the muscle in my shoulder that is like a softball this is a huge trigger so we shall see. He seemed to be in such a hurry he asked how many bad migraines i had had since I was there last I was expaining it was terrible he said this will make it better just like dismisses me. I told him that I was not agreeing with the meds he prescribed me last he goes ok i dont want to give you any more pills. GEEZ ok fine I am not keen on the side effects of new meds or whatever I would prefer to not be on any meds but I am so sick of feeling like crap a little help here!! He said to call in a couple of weeks and see how I feel. Ugh ok whatever. I have never had a reaction from botox before but this time the extra 60 units I reacted not so good. I could not think I was dizzy i felt tired and crappy. I think in December when I have this again I will take the next day off I do not like how i feel its awful. I just pray that it works. I have been eating not so great and that comes from feeling like crap and being a bit depressed I feel better now the crappy feeling mostly wore off this afternoon I will get back into my routine tomorrow i swear!! I will start gaining weight back if I dont start getting with the program! I walked today tomorrow I want to do a full work out and then again Saturday this will make it three for this week so then next week my goal is 4. And eating all my healthy foods. I WILL f
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