I have been on butterbur and ginger for about 2 weeks, and I have to say I feel great! The depression and heaviness that was in my head is gone the anger I was feeling all the time is gone for me topamax was evil and turning me into a person that i did not know! This is the week that I would have the worst migraines almost every day and ........NONE! Well thats not true I had a couple of small ones over the weekend and yesterday a small one but it does not wipe me out and they dont give me that brain drain. so much more is getting done around the house. I am still reading the book your migraine brain and am learning lots from it as one thing a migriane brain gets dehydrated very easily and that is actually why alcohol really bothers migraine people and it says to drink 1 glass of water to every drink. Even in daily life drink drink drink!! So i read on a website that drinking water through a straw will make you get it down faster and by god its so true!! I have been getting through a 20 oz bottle of water at work every day when I used to maybe have time to drink half or so. I keep it up when I get home too. I used to drink a decent amount of water but I am sure most days did not get my 8 glasses that is allot!! But am doing it now! Also she says to log in a food journal everything you eat I have been doing that too so I can see if there is a pattern to when I have my headaches and if there is a constant in the foods. I truly hope this is not a fluke and I can finally begin living my life like a normal person.
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I dont think that I can do the whole avoiding soy thing it is in to much and I have given up so much already. Yesterday I had a healthy breakfast packed for work but I work in a store so everything is right at my fingertips. I didnt want what I had packed so I ended up eating a Belvita breakfast cookies they are healthy but yes they have soy. I also have graham crackers in the morning with my coffee and yup soy. I will try but I have a job and lots of things I want to avoid I eat because I simply do not have enough time to make everything homemade. Many breads and rolls have BHT I would prefer not to eat this but do I have time to make homemade bread and rolls ...umm NO! I stopped drinking coffee mate and cremora over a year ago lots of chemicals. Sometimes I make homemade flavored creamer but have adjusted to the taste of half and half and I still have to add some sugar! Now for some reason, well I guess it was looking for soy, I see that my half and half has carageenan I have avoided flavored creamers for this reason. Carageenan is a funny one because its a thickener and it can be a source of MSG. sometimes it is made with sea weed this is a safe one to eat but how do i know the difference? Unless its stated and sometimes it is I just do not know. So I have decided to see if I can handle whole milk in my coffee instead of half and half. I can and no carageenan in it. I also noticed that my most favorite toothpaste has maltodextrin in it a known source of MSG!! CRAP! So I am switching to crest total care I see no maltodextrin in it. Since this months headache lasted 3 weeks it gives me one week until i start my period so one week to feel human and be headache free. I am trying to really eat healthy this week and work very hard to avoid all trigger foods I am hoping this will make a difference in how my head feels next week. I am packing celery with peanut butter for my mid morning snack for lunch i will have salad with one of my good dressings for dinner its just the kids and me and I am making waffles. I have been drinking a berry detox tea too this helps sometimes the regular detox tea tastes OK but the berry is pretty good. I have felt so good this week and I am wondering if its the butterbur already or just being off topamax. It is amazing how much that I can get done around here and how clean my house can be when I feel really good. I did not sleep well at all last night wind and rain kept waking me up so far I do not feel tired but I have a ton of stuff to do today and i hope I do not get hit later
So overall this month has been sucky as far as migraines almost 3 weeks of them with a few days off here and there. I have decided that I have to take things in my own hands as always. I called the Dr like 2 weeks ago and they never called me back. I just want to feel normal for more than 2 days at a time. I went to a party last week and didnt bring up migraine but the hostess did. Apparently one of her friends has them so we talked about it. She asked if I had eliminated Soy I said I had not thought much about this. She said that soy like MSG is in everything and its Soy Lastitate. I admit as of right now I have not done any research on this other than look at labels and she is right its everywhere. She said soy affects a womans hormones and since my migraines are so often hormone based I thought ok maybe i should do this. Well until I looked at labels and geez it's in everything. The thing is if it doesnt have that soy lasitate it has soybean oil used in it. Like one of my best snacks are triscuits yup used soybean oil, I wanted crackers in my soup and again soy in it ANY chocolate has soybean they use it to bind the chocolate..DAMN!! i will try eliminating for a week and see. I looked up all kinds of migraine treatments ect. I have read allot about butterbur extract it has actually had clinical studies and over 3 months had a 60% reduction in the amount of migraines. I started it today I will see how it works. I also had a massage today hoping to break the cycle before my migraines start next week. So new things and we will see. I am reading a new book called the migraine brain hoping for new incite.
Last week was a terrible week I had a migraine every single day except Friday but then Friday I felt terrible spacey tired, brain fog. It was not good. I did however have a good weekend. Now its Tuesday and I started with yet another migraine yesterday, this seems to normally go hand in hand with the second wave of my period though I have not restarted the spotting the head doesnt care! What is very frustrating about these headaches is that they do not seem to go away all day what I mean is that they go away then come back so its 2 maxalts per day. Now when you get 12 per month I am worried I will not have enough. I called the Dr. Today because I am so frustrated but really dont think he will help I have lost all faith. I have read allot about the herb butterbur I had a long talk with my husband this weekend. Since I have seen this new Dr. I have gotten worse, lowering the topamax needed to be done but has made the migraines much much worse and most likely the lowering of the verapamil has not helped either. I believe I need to get off the topamax it has changed my personality and made me depressed and stupid Now when I am getting a migraine i believe that I loose m ability to think well and then when the really bad brain fog kicks in forget about it. So back to what I have been reading about butterbur people on websites can rate how these things work for them and butterbur seems to get high ratings many people say that it takes the brain fog away I have never read that ANYTHING takes away brain fog! The other thing is since I have lost so much weight I truly hate to have these drugs with the side effect of weight gain as so many of these migraine drugs do and the mental side effects like actually giving me brain fog or making me angry or agitated make me so nervous. I have a very important wedding this weekend and I just pray that I feel good for it geez I just pray I feel good tomorrow.
So yesterday I started my period and yes this is the beginning of my 14 or more day headache as of late. Last month I never truly recovered and never felt 100% so back to the feeling like crap. I think the chasteberry has lost most of its effect things for me seem to work for awhile and then stop this seems to be another thing that has done that. Its so frustrating. Part of the issue is that the medicines have dropped dosages. I am doing my best to fight this , my husband gave me an awesome massage this helped loosen up my neck. I am using the brain sync and taking the maxalt before bed. So the headache today was much more tolerable however I was not able to think well and tired and spacy, I continue to have pressure over my left eye. I will take maxalt and tramadol before bed and use the brain sync music. I am going to download a new brain sync there is one for focus and I have wanted it for a long time. My husband has been getting mad at me for not being able to focus and I am desperate here. So I will try it. I do not know how I will have time to use it in the morning but I will try. Some ho this has to end but I do not think it ever will.
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